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118-hr-9872Committee
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Sickle Cell Disease Treatment Centers Act of 2024

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Summary

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The Sickle Cell Disease Treatment Centers Act of 2024 establishes a federal grant program to create treatment centers using a hub-and-spoke model to provide coordinated care for patients with sickle cell disease and other heritable hemoglobinopathies. Medical hubs (hospitals, clinics, or university health centers) would partner with spokes (primary care providers, federally qualified health centers, and other providers) and community-based organizations to deliver comprehensive services including specialty care, genetic counseling, telehealth, pain management, and mental health services. The program aims to improve access to lifelong coordinated care, support pediatric-to-adult health care transitions, collect clinical data, and conduct public health awareness activities.

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Bill details

Congress
118
Bill type
hr
Introduced
September 27, 2024
Sponsor
Not yet available
Last action
September 27, 2024— Referred to the House Committee on Energy and Commerce.

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