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The Sickle Cell Disease Treatment Centers Act of 2024 establishes a federal grant program to fund treatment centers using a hub-and-spoke model to improve care for patients with sickle cell disease and other heritable hemoglobinopathies. Medical hubs (hospitals, clinics, or university health centers) would coordinate comprehensive care including stem cell transplants, gene therapy, infusion services, and telehealth, while spokes (federally-qualified health centers, primary care providers, and other providers) would deliver coordinated care in partnership with community-based organizations. The program aims to improve access to lifelong coordinated care, support pediatric-to-adult health care transitions, collect clinical data, and conduct public health awareness activities.
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