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118-s-5433Committee
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Genomic Data Protection Act

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Summary

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The Genomic Data Protection Act requires direct-to-consumer genomic testing companies to provide consumers with the ability to access, delete, and request destruction of their genomic data and biological samples. Companies must provide clear notice of these rights, process deletion requests within 30 days, and notify consumers of completion. The Federal Trade Commission is authorized to enforce the law as an unfair or deceptive practice, with rulemaking required within one year.

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Bill details

Congress
118
Bill type
s
Introduced
December 5, 2024
Sponsor
Not yet available
Last action
December 5, 2024— Read twice and referred to the Committee on Commerce, Science, and Transportation.

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