DeOndra Dixon INCLUDE Project Act of 2025
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Summary
This bill amends the Public Health Service Act to authorize the National Institutes of Health (NIH) to establish and carry out the INCLUDE Project, a coordinated program of research, training, and investigation focused on Down syndrome. The program would support high-risk research on trisomy 21, expand clinical trials inclusive of people with Down syndrome, investigate co-occurring conditions such as Alzheimer's disease and autoimmunity, and improve quality of life for individuals with Down syndrome and their families. The bill requires the NIH Director to coordinate Down syndrome research across institutes and centers, consult with patient advocates and stakeholders, and submit biennial reports to Congress on research activities and findings.
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