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119-hr-4709Committee
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Newborn Screening Saves Lives Reauthorization Act of 2025

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Summary

Official CRS summary

This bill reauthorizes through FY2030 and revises several programs and activities relating to newborn screening for certain conditions and diseases. Among its changes, the bill reauthorizes and makes mandatory the Hunter Kelly Research Program at the National Institutes of Health, and national surveillance activities conducted by the Centers for Disease Control and Prevention. The bill also provides statutory authority for current regulations that exempt federally funded research on non-identified newborn blood spots (i.e., residual blood samples used to screen for serious conditions) from regulations that govern research on human subjects.

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Bill details

Congress
119
Bill type
hr
Introduced
July 23, 2025
Sponsor
Kelly MorrisonDMN
Cosponsors
7
Last action
September 10, 2025— Forwarded by Subcommittee to Full Committee by Voice Vote.

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