Recognizing the significant and often overlooked behavioral health needs experienced by individuals and families affected by rare diseases, and for other purposes.
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Summary
This resolution recognizes the behavioral health needs of individuals and families affected by rare diseases, which often experience anxiety, depression, and caregiver burnout during lengthy diagnostic journeys. It calls upon federal agencies to prioritize behavioral health access in rare disease initiatives, encourages development of peer support programs, and recommends investment in the behavioral health workforce and continuing medical education on rare diseases.
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How your representatives voted
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